Monday 3 November 2014
Monday 22 September 2014
#chicktrain
Have you seen the #chick Train on Facebook?
#Chick is shared every Friday and is used to create awareness for not only Charleigh Jayne's Berlin Heart Fund, but also, to raise awareness for CHD (congenital heart defects) and for organ donation, donors and recipients.
SO when you see the Train on your timeline, give it a share, it takes 2 clicks and together, we can all be heroes!
Much Love
Team Chick xxxxxx
Tuesday 15 April 2014
#chickband
SOLD OUT!!
500 #chickbands
500 proud owners
£500 to start the Charity Fund
We have now placed an order for some more, and we will have some
seasonal special limited edition ones coming too.
With all the support we have been receiving for Charleigh Jayne’s
Berlin Heart Fund, it’s hard not to get a little emotional. To know that she
touched so many people in her short time here.
So in the next edition of our blogs, you will see stories of people
who met Charleigh, who have very special memories of her.
Thank you all for your continued support.
The CJBHF Team xxx
Thursday 3 April 2014
Have you got your #chick on?
Have you got your #chick on?
You can order your wrist band via our website www.charleigh-jayne.webs.com
Or tweet your order to @cjbhf
Or via the Facebook page www.facebook.com/pages/Charleigh-Jaynes-Berlin-Heart-Fund
Here are some of our followers who already have theirs, can you spot yours?
Monday 31 March 2014
Heart Warriors
It is with a very sad heart that I write this post.
As I write this I am not sure of the outcome, but I am hoping it isn't the worst. As many times we have done before, I am praying for a miracle.
Throughout the journey of a heart transplant for a child, you form friendships, a support circle, and bonds with others on the same journey as yourself. This not only helps you, but helps everyone around you.
The tail end of this support, newly formed friendships and bonds is that you ride your own roller coaster, but you also board theirs. You ride the waves of relief and good news, but you also battle the undercurrents of bad news, long recoveries and sometimes death.
There is just one thing on my mind when it comes to this. WHY?
Why? is the Transplant list so long?
WHY? have the government not changed the infant rules BEFORE?
Why? does this have to happen to the ones you love?
and most importantly WHY is everyone not on the list?
So with the questions unanswered we will have to answer them ourselves?
An Army of Heart Mums, Dads, Sisters and Brothers, Aunties and Uncles.
An Army of Doctors, Nurses, Play specialists.
An Army fighting for one thing. One Outcome. One life does not have to end for nothing when it can start 7 more.
Please, if you read this, and have not already signed your organ donation register, wherever you are in the world. Become a hero today and sign it.
And if you have Facebook, or twitter, share this blog, and you might convince one person to sign the register but you will have saved another 7 lives too :)
Charleigh Jayne's Berlin Heart Fund
As I write this I am not sure of the outcome, but I am hoping it isn't the worst. As many times we have done before, I am praying for a miracle.
Throughout the journey of a heart transplant for a child, you form friendships, a support circle, and bonds with others on the same journey as yourself. This not only helps you, but helps everyone around you.
The tail end of this support, newly formed friendships and bonds is that you ride your own roller coaster, but you also board theirs. You ride the waves of relief and good news, but you also battle the undercurrents of bad news, long recoveries and sometimes death.
There is just one thing on my mind when it comes to this. WHY?
Why? is the Transplant list so long?
WHY? have the government not changed the infant rules BEFORE?
Why? does this have to happen to the ones you love?
and most importantly WHY is everyone not on the list?
So with the questions unanswered we will have to answer them ourselves?
An Army of Heart Mums, Dads, Sisters and Brothers, Aunties and Uncles.
An Army of Doctors, Nurses, Play specialists.
An Army fighting for one thing. One Outcome. One life does not have to end for nothing when it can start 7 more.
Please, if you read this, and have not already signed your organ donation register, wherever you are in the world. Become a hero today and sign it.
And if you have Facebook, or twitter, share this blog, and you might convince one person to sign the register but you will have saved another 7 lives too :)
Charleigh Jayne's Berlin Heart Fund
Monday 17 March 2014
What does Organ Donation Mean to you?
What does Organ Donation mean to you?
Unless you have been directly effected by the need for a donor organ, its not on the top of the to do list.
You never imagine, the long wait, the nerves, the stress, that call.
Once upon a time, there was this beautiful little princess, she was on day 254 of a Berlin heart, waiting for her call.
At 4am THAT call came, but some people are not that lucky, and should it be down to luck?
Why?
Why should you, or your loved one have to face every day waiting for death on the list?
Why should you have to wait?
Why cant there be an opt out service?
Why are there not enough to make a difference?
Why? Selfishness, perhaps, ignorance maybe. Lack of understanding, DEFINATLEY.
There is never a good time to discuss death and organ donation with young children, but what happens when a young child needs a donor organ?
When is it ok to loose a loved one? When is it ok to give a gift of life?
Last years statistics, they don't look too bad, but translate them into waiting lists, and funerals.
What cost do we have pay to get the Opt out system
Just going to leave you with this...
What would YOU do, if YOU were waiting for an organ?
Be A Hero, Save a life.
www.http://www.organdonation.nhs.uk/
Unless you have been directly effected by the need for a donor organ, its not on the top of the to do list.
You never imagine, the long wait, the nerves, the stress, that call.
Once upon a time, there was this beautiful little princess, she was on day 254 of a Berlin heart, waiting for her call.
At 4am THAT call came, but some people are not that lucky, and should it be down to luck?
Why?
Why should you, or your loved one have to face every day waiting for death on the list?
Why should you have to wait?
Why cant there be an opt out service?
Why are there not enough to make a difference?
Why? Selfishness, perhaps, ignorance maybe. Lack of understanding, DEFINATLEY.
There is never a good time to discuss death and organ donation with young children, but what happens when a young child needs a donor organ?
When is it ok to loose a loved one? When is it ok to give a gift of life?
Last years statistics, they don't look too bad, but translate them into waiting lists, and funerals.
What cost do we have pay to get the Opt out system
Just going to leave you with this...
What would YOU do, if YOU were waiting for an organ?
Be A Hero, Save a life.
www.http://www.organdonation.nhs.uk/
Wednesday 12 March 2014
Urban Treasure Hunt Milton Keynes
So what is it?
We have hidden 2 #chick stones across Milton Keynes. They are accompanied with an envelope with instructions.
You will receive 1 photo and 3 clues on where to find the stones on Charleighs page.
Go and check them out find them then follow the instructions.
Love all at the CJBHF team xxx
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